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i feel the need to say this, for many of you who know me know a lot about me. however what i don't mention about (until recently) is my brother kyle.

well lately i've seen many tv shows that involve stories about families that have an autistic child or documents with the child who has autism talk about it. and since the recent events with kyle (diagnosed with lime disease, and is now treated with injections for the lime, the problem was that they attacked something to his chest, an IV. and he pulled it out. now they are working with the injections and he'll be back at his place within a few days which is great!) i feel that maybe it's time for me to make an announcement about it; i need to take a stand and explain to everyone what autism is and how now it's effecting many here in the united states. i'm sure most of you have an idea, but for the parent and sibiling who wanted that child to be like the rest of us (normal and functional) it's tough and stressful. i am happy kyle is being taken care of and well, but i do get worried with the simple things such as lime disease (that again is curable, a normal person would identify it, treat it and done) it takes a lot more with a person with autism, a lot of things take more care and more thought. if you change their pattern, they become agitated and for people with severe autism, it can be violent.

according to http://www.autismspeaks.org:
"Autism impairs a person's ability to communicate and relate to others. It is also associated with rigid routines and repetitive behaviors, such as obsessively arranging objects or following very specific routines. Symptoms can range from very mild to quite severe."

as i mentioned before, the way my brother lived was in a structure and pattern, his mind is closed off to the world, even if he understands us and knows who we are he cannot feel love, he can only emulate that emotion. even though he would hug me and my parents, i believe the emotion of love he could only give a lot to was my father. they had such a close relationship that blew me away. kyle would always smile with my dad, play with my dad. there was always this opening at the end of that tunnel that kyle had in his eyes. he would light up. now i think about it, i feel emotional. i can see in my dad's eyes how much it hurts to see kyle go through so much.

"Today, 1 in 150 individuals is diagnosed with autism, making it more common than pediatric cancer, diabetes, and AIDS combined. "

ten years ago, autism wasn't so commonly known to many so bringing kyle out in the world was difficult and it had it's embarrassing moments. i remember one day going to mcdonalds getting a simple meal and eating with my grandfather and kyle. and when kyle would just be himself, make noise and move around a woman turns to us and told us to shut him up. it made us upset and angry that she didn't even realize he had a problem, not a sorry or anything. now that autism is seen as a real problem and that there are donations dedicated to it, it's more forward people can be aware, understand not be afraid of children like that. they are all beautiful, each and every one of them. i want to help, do something, i want my friends to help. no i'm not asking for donations i just want your support, your opinions, ideas..have you ever seen a child like that? ever heard of autism? if you did where? if you didn't until now was it helpful? any information or ideas from you would be greateful.

my brother kyle was diagnosed with severe autism at 2/3ish. we didn't know ways to cope with him, but we learned and we dealt with what god and life gave us, and that challenge lead us to kyle going to a better place upstate, losing weight, knowing more things like using the bathroom, cleaning tables, windows and floors, using dinner utensils he's better than ever. even with the lime disease, i think if he still lived with us and he had this it would be tougher. i'm greateful.

Autism Speaks
Cure Autism Now

make some sort of difference. even if it's answering this post with a heart, it makes a small difference with me.


i love you kyle, keep on smiling.

Comments

( 14 comments — Leave a comment )
jiyongism
Mar. 20th, 2007 01:46 am (UTC)
You completely touched me with this -- no joke. I'm very glad your brother has such supportive people around him, and that he has your family's love. I know things have been hard for your family, as you told me a few instances before, but I pray and hope that everything will turn out for the best. ♥
zeroalexis
Mar. 20th, 2007 02:08 am (UTC)
kyle means the world to us, even if i barely spoke about him i do very much love him. i think about him every day, and when i see people who have the same symptoms that he has, i cry because i miss him so much.
immaculate
Mar. 20th, 2007 02:06 am (UTC)
Thank you for making this post. I was one of the people who didn't know this about you.

I have a friend with two brothers with autism. They are both doing well, as both of their cases are quite mild. One is attending special High School and the other is in a working program doing mechanical work. I'm very happy for both of them.

Also...

Last year, when I worked in the daycare center, I had to tell a set of parents that I thought they should test their son for autism. This was a Japanese family, and in Japan, autism is still not well known at all. Neither of the parents knew what autism was. At that time, their son was not responsive to anything (except that he would often sing to himself). I saw him with his mother a few weeks ago, when I was driving and they were going into a store. It was lovely to see how much better it was, even in that instant. His eyes appeared totally different. Before, they had always been very blank and dull. At that time, they appeared to be alive. He's going to a school that can work with him very closely, as well as help his parents.

I don't think it's anything special what I did, and it was hard for that family. But in the end it ends up to be a great thing for them, I believe.



zeroalexis
Mar. 20th, 2007 02:12 am (UTC)
thank you so much for sharing your story with me about this. i am happy to see that you told these parents before they would have to deal with the worse of it. i believe if one is diagnosed early (especially in this time of it being well known) they can know the different ways to cope with a child like that and help that child to at least do much more than be ignored.

♥ you helped a family, and that makes a huge difference.
hoyah
Mar. 20th, 2007 04:53 am (UTC)


d'aw~
zeroalexis
Mar. 20th, 2007 06:54 am (UTC)
thanks :]
gimmick_
Mar. 20th, 2007 05:35 am (UTC)
I think you really took a giant leap with this post, Lexi and I'm proud of you for it. It's really awesome that you were willing to speak out on behalf of your brother.

Stay strong ^^;
zeroalexis
Mar. 20th, 2007 07:01 am (UTC)
thank you so much! i really did my best to express what autism is and how people are affected by it. but no matter what he's my brother and i love him so so much.
dearwestgirl
Mar. 20th, 2007 08:42 am (UTC)
I always have your brother in my thoughts and prayers! All of you!
I think years back, people thought a thing like that was the end of the road when it came to living freely. But now I think people realize how much hope there is. That is so entirely possible to live life and live it fully, even with such adverse things to overcome.
You and your family are all so strong. I think its very beautiful! Even despite hardships, it makes you much stronger people who can appreciate the things you work for.
Its a showing that no matter what challenges are places before human beings that they can still push forward and make things better. So for that, I know nothing will be impossible for you. Its wonderful that the same have changes to where people are more aware of these things and they arent overlooked, but taken seriously.
We don't talk much but I am cheering you on, always. 'n' <3
zeroalexis
Mar. 20th, 2007 06:53 pm (UTC)
no matter what we did, we would always try to have kyle be a part of it. even now when he's far away. birthdays, thanksgiving, christmas he's always there. but even if it gets harder we will never leave him out. before when autism was only a thing certain people had, so they didn't know enough... now many have family members, friends, even co-workers (who knows!) who has autism. now it needs to be known, people should at least not be naive.

we went though many challenges, but you know what? i respect people who take care of the mentally challenge, and i always sympathize and want to reach out to those people who deal with a person with autism. i want to pray for each one of them, they all deserve the best.

thank you for having him in your thoughts and cheering me on. i appreciate your thoughts ♥ :]
laizuki
Mar. 20th, 2007 10:43 am (UTC)
Thanks for writing this. <3 I, for one, don't know much about autism, but I don't think ignorance is any good when it comes to situations like these ones. ♥
zeroalexis
Mar. 20th, 2007 07:00 pm (UTC)
well i hope i helped some on what autism is. thank you! this made a difference for me :] ♥
thoughtless
Mar. 20th, 2007 02:43 pm (UTC)
I'm sad that the spinal tap came back with results that were positive towards lime disease. ._. I wanted those to be negative, but I guess I'm glad they can make him better again!!
♥onSusu&KylecauseIeafflethem...-andwillrapethemoneday-
zeroalexis
Mar. 20th, 2007 07:03 pm (UTC)
i know, i'm sad too about it. but you know what? it might explain a lot of why he's been so violent and agitated lately..he'll be better and i heard he'll return back to his place soon :] as i said in the post but hey always good saying this many times! ♥ and one day you will meet kyle ;o;! i want you to!
( 14 comments — Leave a comment )

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